IBD Surgical Outcome Registry

Other sources of help

Organisations offering support and information on bowel conditions for patients and the public. Please contact your GP if you want to be referred to a bowel specialist.

Support organisations

Beating Bowel Cancer

A charity supporting everyone affected by bowel cancer.

Bladder and Bowel Community

A supportive community for anyone affected by bladder and bowel conditions.

CICRA: Crohn’s in Childhood Research Association

Support and information to families of children with inflammatory bowel disease (IBD).

Colostomy Association

Provides support, reassurance and practical information to anyone who has or is about to have a colostomy.

Crohn’s & Colitis UK

Charity working to prevent the two main forms of inflammatory bowel disease (IBD). They have a helpline and information for patients and professionals.

ERIC: The Children’s Bowel & Bladder Charity

ERIC provides information, support and resources to children, young people and their families and health professionals on bladder and bowel problems.

IA: The Ileostomy & Internal Pouch Support Group

A support group run by and for people with ileostomies and internal pouches. Aims to help people who have had their colon removed return to a full and active life as soon as possible after surgery.

Mothers with Anal Sphincter Injuries in Childbirth (MASIC)

This foundation has been established to support mothers with anal sphincter (AS) injuries during childbirth and raise awareness.

The HPV and Anal Cancer Foundation

Based in New York and London, the foundation aims to destigmatize HPV and anal cancer. They have a peer-to-peer support programme, and useful website.

Other sources of information

Bowel & Cancer Research

Funds high quality research into bowel cancer, inflammatory bowel disease (colitis and Crohn’s disease), irritable bowel syndrome and other bowel problems. It’s website has up to date and reliable information about bowel cancer.

Bowel Cancer UK

The UK’s leading bowel cancer research charity. It aims to save lives and improve the quality of life for all those affected by bowel cancer. It provides up-to-date information about bowel cancer.

Bowel Control Advice

Website with information about what incontinence is, what healthcare services are available and what treatments might be offered.

Bowel Symptom Checker

Website for the general public where you can check out bowel disease symptoms, treatment and information.

Cancer Research UK

Charity raising money to fund research into cancer treatment. They also provide cancer information to the public.

Core: fighting all digestive diseases

Supports medical research into digestive diseases to provide more effective treatment and earlier diagnosis, and provides evidence-based information for patients

Embarrassing Problems

Website combining expertise from doctors and editors with insights from people experiencing health problems that they find embarrassing.

Health Talk Online

Provides free, reliable information about health issues, by sharing people’s real-life experiences.

IBD Passport

Evidence-based travel advice for individuals with Crohn’s disease or ulcerative colitis.

Macmillan Cancer Support

Supports people diagnosed with cancer to take back control of their lives.

NHS Choices

The official website of the National Health Service in England, providing comprehensive health information service with thousands of articles, videos and tools.

Sarcoma: Information for Leiomyosarcoma Familes

Website published in the USA for people affected by leiomyosarcoma. Has resources for patients and includes information about power morcellators.